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TOPIC: Dana
#403
Kristy (User)
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Wanting to talk to someone with CML 1 Year ago Kudos: 0  
Hi my name is Kristy I was diagnosed with CML just under a year ago when i was diagnosed i was 18 im now 19, I was just wondering if there is anyone around my age who would be willing to have a chat. Thanks Kristy
 
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#407
SwanValleySue (User)
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Re:Wanting to talk to someone with CML 11 Months ago Kudos: 0  
Hi Kristy

There are a number of young women on Talk Blood Cancer in the CML Forum who are a little older (early 20's)
Also there is a list of other support and chat group _link_s (world wide) where young people have CML

If you wish - ask the question in the TBC group and in the meantime I will ask on other boards for you

Do not hesitate to contact me personally Kristy

Cheers
Sue
 
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Keep Well, Cheers Sue
Dx on my birthday - August 2007
16/06/2008 PCR 0.001% 3.5 Log
Glivec 600mg - current dose
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#408
SwanValleySue (User)
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Re:Wanting to talk to someone with CML 11 Months ago Kudos: 0  
Kristy

I have found a Canadian young adult the same age as you and diagnosed a few months ago

Would you like to converse with her

Please advise

Sue
 
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Keep Well, Cheers Sue
Dx on my birthday - August 2007
16/06/2008 PCR 0.001% 3.5 Log
Glivec 600mg - current dose
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#409
Social (User)
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Re:Wanting to talk to someone with CML 11 Months ago Kudos: 1  
Hi Kristy, My husband was diagnosed when he was 28, I am younger than him and we have three kids.
 
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My Husband was diagnosed with CML in June 07
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#410
Kristy (User)
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Re:Wanting to talk to someone with CML 11 Months ago Kudos: 0  
hi Sue thank u for the reply i would love to speak with the girl from Canada who is around my age i will give u my email address and feel free to give it to this girl my email address is This email address is being protected from spam bots, you need Javascript enabled to view it once again thank u so much

Kristy
 
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#411
Kristy (User)
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Re:Wanting to talk to someone with CML 11 Months ago Kudos: 0  
hi there thank u for the reply feel free to email me to talk about the Cancer my email address is This email address is being protected from spam bots, you need Javascript enabled to view it i look forward to hear from u

Kristy
 
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#414
dana (User)
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Re:Wanting to talk to someone with CML 10 Months ago Kudos: 0  
hi i was diagnosed about 7 weeks ago with cml i was 18 at the time of diagnoses and 22 weeks pregnant its not a very nice thing for any person to go through no matter what age young or old.
 
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#415
SwanValleySue (User)
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Re:Wanting to talk to someone with CML 10 Months ago Kudos: 0  
Hi Dana

Congratulations on being a Mum

I am friends with another young woman who was diagnosed when she was pregnant and now is the
MUM of a healthy little girl who is just 10 months old. A number of guys have also successfully conceived children and one Indian woman it has been published has had twins.

What State are you in - if in Perth - we can get together

Also if you have a look at the Talkbloodcancer Forum there is heaps of info of CML and other support groups with many young woman having bubs successfully with CML. Being pregnant with CML will be at times perhaps a little tricky with your management but keep as well as you are able.

What drug have you been put on - interferon during the pregnancy or some other - or none at all.

No doubt you will go thru quite abit - my suggestion is to get as much info as possible

If you would like to forward me by private email - I will forward to other Mum who I can speak for her
would only be too happy to speak with you by email or phone about her successful pregnancy with hints
and her journey with CML.

21st May there is a CML Telephone Conference - register thru Talkbloodcancer at the Leuk Foundation

Sue
 
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Keep Well, Cheers Sue
Dx on my birthday - August 2007
16/06/2008 PCR 0.001% 3.5 Log
Glivec 600mg - current dose
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#416
Kristy (User)
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Re:Wanting to talk to someone with CML 10 Months ago Kudos: 0  
Hi Dana,

Its a very big shock to life getting diagnosed with cancer and it would of been an even bigger shock to u getting diagnosed whilst pregnant.

I would love to chat to u more about it all so here is my email address its This email address is being protected from spam bots, you need Javascript enabled to view it feel free to email me anytime.

Hope to hear from u soon
Kristy xo
 
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#417
SwanValleySue (User)
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Dana 10 Months ago Kudos: 0  
Afternoon Dani

I have spoken to Shelley who also was diagnosed while pregnant

Shelley is very approachable is would love to chat and give you suggestions to help both with your CML condition while pregnant

I have informed the Talkbloodcancer Forum of your diagnosis
so go there for lots of help and advise

Forward me your details and I will arrange for Shelley to contact you

Sue
 
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Keep Well, Cheers Sue
Dx on my birthday - August 2007
16/06/2008 PCR 0.001% 3.5 Log
Glivec 600mg - current dose
  The administrator has disabled public write access.
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