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Hi, I am Social and my Husband has CML (1 viewing) (1) Guests
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TOPIC: Hi, I am Social and my Husband has CML
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Social (User)
Fresh Boarder
Posts: 19
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Hi, I am Social and my Husband has CML 2 Years, 2 Months ago
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Kudos: 1
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I thought I would introduce myself to Revive. I wasn't sure where to put this post, so I chose this sub forum.
We are both under 30 and have three children together.
This is my post made over on talkbloodcancer.
Hello everybody.
My husband was diagnosed with CML last year. He is a big man and I was worried about his health and pushed for him to have a check up with the dr and get some routine blood tests to make sure his cholesterol was okay. He had the Dr's visit at 11am and was in a hospital ward by 9pm.
They picked up his high white blood cell count and rang him straight away saying he need to go see someone as it could be leukaemia. Honestly, who says that to someone over the phone? "Could be"? Anyway, he was also diagnosed with ITP. We receiving lots of jabs about being greedy and taking two rare diseases
After the initial shock and first week in absolute tears dragging the kids and my pregnant self back and forth to the hospital every day, life started to return to normal.
Anyway, onto the interesting stuff.
-He is on 600mg of Glivec and has been for going on 9 months now. He has constant nausea and fatigue, bad bone pain, and occasional swelling and his skin has only recently started breaking out on him.
-His blood work was brought down to normal within a month or two of starting Glivec. I think he reached the second phase of remission within 4 months. However everywhere I look everyone has different stages.
-He has already had three bone marrow bi-biopsy's and each one has shown he is reacting well. First one was for the Ph chromosome test, second showed no Ph chromosome but there was still the cells that created it (if that makes sense?), and the third one showed fewer cells than before, by a lot.
I know he is lucky and that treatment is working very well and extremely quickly, but life is still difficult.
The treatment is worse than the disease in terms of side effects and I struggle a lot of the time as I feel like I am looking after everyone by myself.
But I would rather have him here than not, so this is the path we were given
Thanks for reading,
Social
I won't use first names or give any specifics out as we like to keep this private, for the most part. So please don't feel as if I am stand offish
Social.
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Last Edit: 2008/07/08 09:38 By Social.
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My Husband was diagnosed with CML in June 07
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The administrator has disabled public write access. |
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Social
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2008/07/08 09:37
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DanT
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2008/07/09 10:40
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DanT
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2008/07/09 12:01
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Social
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2008/07/11 08:33
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Imallbetter
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2008/07/11 16:22
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Imallbetter
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2008/07/11 16:43
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Rochelle
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2008/07/12 15:46
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Social
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2008/07/13 06:59
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Imallbetter
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2008/07/13 12:49
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songbird03
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2008/07/29 22:28
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cmlwife
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2009/11/02 11:06
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