|
Do you have PNH, AA or MDS? (1 viewing) (1) Guests
Favoured: 0
|
|
|
TOPIC: Do you have PNH, AA or MDS?
|
Lucy635 (User)
Fresh Boarder
Posts: 3
|
|
Do you have PNH, AA or MDS? 9 Months, 1 Week ago
|
Kudos: 0
|
|
The PNH Support Association of Australia Inc is a newly formed not-for-profit organisation for patients with PNH, AA or MDS.
We currently comprise of a small group of patients with PNH and AA and aim to develop a support network to assist Australian patients and their friends and family with interaction, information, practical support and a strong community voice.
We will soon be incorporated with funding to achieve the above _object_ives as well as lobby the Government to fund the only treatment available to PNH patients through the Life Saving Drugs Program.
If you are interested in becoming a member, please send me a private message.
Regards,
Linda Charlton
President
PNHSAA Inc
|
|
|
|
|
|
|
Last Edit: 2009/08/10 17:58 By Lucy635.
Reason: deleted email address
|
|
|
The administrator has disabled public write access. |
Anto (Admin)
Admin
Posts: 9
|
|
Re:Do you have PNH, AA or MDS? 3 Months, 3 Weeks ago
|
Kudos: 2
|
|
Hi Linda,
I was wondering how your new organisation was going. We would love to hear of how you are progressing.
Anto
|
|
|
|
|
|
|
The administrator has disabled public write access. |
|
|
|
|
 |
