Throughout 2007, the ‘Revive’ Young Adults Program development team at the Leukaemia Foundation conducted a national research survey of needs for young adults affected by blood cancer. Patterns emerged which indicate the major needs of this demographic. This research will assist the development of age-appropriate, evidence-based education and support programs for young adults affected by blood cancer. To view the questionnaire please download survey.

Responses received: 100

The majority of respondents are:

• female
• either ‘0-6’ or ‘24 & over’ months post treatment
• diagnosed with lymphoma
• 18 – 25 yrs old

Physical 

1. Diet & Nutrition
2. Rebuilding your immune system
3. Physical Activity and Staying Healthy

Emotional 

1. Fear of relapse
2. Experience of “what now?”
3. Dealing with changing emotions

Social 

1. Returning to work
2. Relationships with family & friends
3. Dealing with isolation

Online:

1. Information
2. Discussion forum

(All options rate highly indicating that this would be an effective format)

Community:

1. Regular, facilitated meetings with survivors
2. Education and support seminars

The majority of respondents indicated that they found the proposed program, as it was described, to be relevant.

Thanks to everyone who contributed!